Pennsylvania Cancer Registry

Last Reviewed: Nov. 28, 2023

Registry jurisdiction	Pennsylvania
Type of review required	Both local/state IRB review and Registry review
Type of request forms required	Separate IRB and Registry forms
IRB of record	Pennsylvania Department of Health Institutional Review Board (IRB
How to submit request:	Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	be specific in what data they need and why they needed. Just don't ask for everything.
Processing timeframe	For linkage studies and de-identified data release: Greater than 6 months For patient contact studies: Greater than 6 months
Patient Consent and Contact Procedures	Patient consent is obtained by: Researcher
Pediatric research considerations	None
Registry Fees	$200 for first year of data, $100 for each after that. $.005 per record requested to link Exceptions: Governmental requests
IRB Fees	No IRB fees
Collaboration with local researcher required	No

Pennsylvania CaRI Database Information