Pennsylvania CaRI Database Information

Last Reviewed: Nov. 25, 2024

Pennsylvania Cancer Registry

State Laws and Regulations
Registry General Information

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General Information

Registry state statute URL

https://www.health.pa.gov/topics/Reporting-Registries/Cancer-Registry/Pages/Law.aspx

Registry state statute most recent update

2010

Registry administrative code/regulations URL

https://www.health.pa.gov/topics/Documents/Diseases%20and%20Conditions/Cancer/PCR%20Manual%202016.pdf

Registry administrative code/regulations most recent update

2016

Registry location

Government Agency

Cancer Reporting Requirements

Reporting timeframe

3-6 months from diagnosis

Reporting timeframe notes

How often are facilities required to report?

Greater than every 6 months

Reporting frequency notes

Health care facilities with an active follow-up program must annually report vital status, date of last patient contact, and, if available, cancer or tumor status of reportable cancers and reportable Non-malignant conditions to PCR

Reporting facilities as defined in law

Hospitals, Laboratories

Reporting facilities as defined in administrative code (regulations)

Physician/Healthcare Providers, Radiation/Radiology Facilities, Ambulatory Care Centers

Pathology reporting required?

Yes

Description of pathology reporting requirements

Electronic reporting required?

Yes

Description of electronic reporting requirements

Penalties allowed under law or regulations?

Certified Tumor Registrar required

Registry Data

Population Data

12,788,795Total Population Count
4.0%% of US Population
3.6%% of US Black Population
2.3%% of US API Population
0.0%% of US AI/AN* Population
1.6%% of US Hispanic Population
3.3%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data

79,777Malignant Cases
4.7%% of US Malignant Cases

Registry type

NPCR

Year registry became population-based

1985

First year high quality, population-based data available for research

1985

Data linked with medicare

Years included in CINA Deluxe

1995-2015

CINA survial years

2008-2014

Participates in the National Interstate Data Exchange Agreement program

Yes (Restrictions - https://www.naaccr.org/national-interstate-data-exchange-agreement/#14)

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	Yes	No
Geospatial Studies	Yes	No
Linkage Studies	Yes	No
Rapid Case Ascertainment Studies	No	No
Re-Abstracting/Patterns of Care Studies	No	No
Survival Studies	Yes	No