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Ontario CaRI Database Information

Last Reviewed:

Ontario Cancer Registry


Registry jurisdiction Ontario
Type of review required Local/state IRB review only
IRB of record https://www.ccohealth.ca/en/request-data-for-research
How to submit request:
Initial required documentation

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Step-by-Step data request submission process

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Other requirements and helpful information for researchers
Processing timeframe
  • For linkage studies and de-identified data release: N/A
  • For patient contact studies: 3-6 months
Patient Consent and Contact Procedures
  • Depending on the study, consent with the physician is required before patient contact. Physician consent is obtained by: Registry
  • Patient consent is obtained by: Registry
Pediatric research considerations None
Registry Fees An administrative fee of $2100, as well as an hourly analytical fee of $75 per hour, will be applied to all research data requests.

The administrative fee is invoiced once approval has been granted. Payment is required before data extraction can begin.

A second invoice for the analytical hours will be sent with the final data disclosure. Data will not be disclosed until the administrative fee is paid. For more information please refer to https://www.ccohealth.ca/en/request-data-for-research

Exceptions: No exceptions
IRB Fees No IRB fees
Collaboration with local researcher required No