Last Reviewed: Nov. 24, 2020

Nunavut Cancer Registry

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Registry Data

Registry type

Canadian

Year registry became population-based

1999

First year high quality, population-based data available for research

2003

Data linked with medicare

Years included in CINA Deluxe

1995-1999, 2001-2007

CINA survial years

Participates in the National Interstate Data Exchange Agreement program

Yes

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	No	Yes
Geospatial Studies	Yes	Yes
Linkage Studies	Yes	Yes
Rapid Case Ascertainment Studies	No	Yes
Re-Abstracting/Patterns of Care Studies	No	Yes
Survival Studies	No	Yes

Contact Information

Required Review(s) and Initial Contact

Type of review required

Registry review only

Initial cancer registry contact/discussion required prior to submitting (or completing) application

Yes

Data request submission first step

Cancer Registry

Registry Review Requirements

Registry Data Request Form URL(s)

No URLs specified.

Method to submit Registry data request

Registry review meeting frequency

As needed

Registry Data Release Policy/Procedure URL(s)

No URLs specified.

Registry Data Use (or Research) Agreement URL(s)

No URLs specified.

Process

Processing timeframe for linkage studies and de-identified data release

1 - 3 months

Processing timeframe for patient contact studies

N/A

Human Subjects Protection Training Requirements

Yes

Collaboration with local researcher required

Yes

Initial required documentation

Step-by-Step data request submission process

Other requirements and helpful information for researchers

Procedures are likely to be revised within the next year

Yes

Data Use and Renewal Requirements

When must study investigators destroy registry data

As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement)

Is notification of data destruction required

Yes

Describe what to include in the notification or provide the URL for a specific form

Detail procedure of data destruction including date, time and method.

Publication review requirements

90 days in advance

Data use agreement renewal requirements

For renewal, it needs a fresh application or amendment procedure.

IRB progress report requirements

It is ' progress report' to the registry, not IRB progress report.

How far in advance of IRB expiration must IRB renewal be submitted

N/A

Participates in VPR

Consent Requirements

Physician consent is required before patient contact

Depends on Study

Physician consent is obtained by

Depends on Study

Patient consent is obtained by

Depends on Study

Pediatric research special requirements

Yes

Describe pediatric research considerations

Ethical consideration for vulnerable group are followed.

Registry fees

Registry fees are charged to obtain data

IRB fees

IRB review fees required

Nunavut CaRI Database Information

Nunavut Cancer Registry

Registry Data

Study Participation

Contact Information

Required Review(s) and Initial Contact

Registry Review Requirements

Process

Data Use and Renewal Requirements

Consent Requirements

Registry fees

IRB fees