West Virginia Cancer Registry

Last Reviewed: Nov. 13, 2023

Registry jurisdiction	West Virginia
Type of review required	Registry review only
IRB of record	IRB of researcher affiliate institution
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	Data request forms are not currently posted to registry website. Please contact Steven.E.Blankenship@wv.gov to discuss study and obtain forms.
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: N/A
Patient Consent and Contact Procedures	N/A - No patient contact studies
Pediatric research considerations	None
Registry Fees	The registry charges a flat $800 fee for data linkages that must be performed for the study. An additional $50 per hour is charged for staff time required to complete the linkage. Exceptions: Fees are charged for data linkages, but not for summary data requests.
IRB Fees	No IRB fees
Collaboration with local researcher required	No

West Virginia CaRI Database Information