North Carolina Central Cancer Registry

Last Reviewed: Oct. 9, 2023

Registry jurisdiction	North Carolina
Type of review required	Registry review only
IRB of record	IRB of researcher affiliate institution
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	Contact the CCR Director for estimated charges for data release so it could be included in the grant application.
Processing timeframe	For linkage studies and de-identified data release: 3-6 months For patient contact studies: 3-6 months
Patient Consent and Contact Procedures	Passive consent with the physician is required before patient contact. Physician consent is obtained by: Researcher Patient consent is obtained by: Researcher
Pediatric research considerations	None
Registry Fees	Please contact the registry director.
IRB Fees	No IRB fees
Collaboration with local researcher required	No

North Carolina CaRI Database Information