North Carolina CaRI Database Information

Last Reviewed: Oct. 9, 2023

North Carolina Central Cancer Registry

State Laws and Regulations
Registry General Information

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General Information

Registry state statute URL

https://schs.dph.ncdhhs.gov/units/ccr/documents/Article7_pages1_3.pdf

Registry state statute most recent update

2013

Registry administrative code/regulations URL

https://schs.dph.ncdhhs.gov/units/ccr/

Registry administrative code/regulations most recent update

2018

Registry location

Government Agency

Cancer Reporting Requirements

Reporting timeframe

3-6 months from diagnosis

Reporting timeframe notes

How often are facilities required to report?

Reporting frequency notes

Reporting facilities as defined in law

Hospitals, Physician/Healthcare Providers, Radiation/Radiology Facilities, Laboratories, Ambulatory Care Centers, Other

Reporting facilities as defined in law, Other

Hospice; Adult Living and Nursing Homes

Reporting facilities as defined in administrative code (regulations)

Hospitals, Physician/Healthcare Providers, Radiation/Radiology Facilities, Laboratories, Ambulatory Care Centers, Other

Reporting facilities as defined in administrative code (regulations), Other

Hospice, Adult Living and Nursing Homes

Pathology reporting required?

Yes

Description of pathology reporting requirements

Electronic reporting required?

Yes

Description of electronic reporting requirements

Penalties allowed under law or regulations?

Yes

Penalties

Reimburse for Costs

Description of penalties

If a health care facility or provider fails to report at least 90 percent of its cases within six months of diagnosis, the registry shall notify the facility or provider in writing of that fact within 30 days and the facility or provider shall be given another 30 days, or up to 60 days for good cause shown, to fulfill its reporting requirement. If a facility or provider is out of compliance for two consecutive quarters and is not demonstrating progress toward becoming compliant then the State Health Director shall direct the registry to collect the data and shall direct the facility or provider to reimburse the registry for all actual costs expended in order to obtain the data up to $100 per case abstracted.

Certified Tumor Registrar required

Registry Data

Population Data

10,153,833Total Population Count
3.2%% of US Population
5.2%% of US Black Population
1.6%% of US API Population
1.0%% of US AI/AN* Population
1.6%% of US Hispanic Population
2.6%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data

56,783Malignant Cases
3.3%% of US Malignant Cases

Registry type

NPCR

Year registry became population-based

1990

First year high quality, population-based data available for research

1995

Data linked with medicare

Years included in CINA Deluxe

1995-2015

CINA survial years

2008-2014

Participates in the National Interstate Data Exchange Agreement program

Yes (Restrictions - https://www.naaccr.org/national-interstate-data-exchange-agreement/#11)

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	Yes	No
Geospatial Studies	Yes	No
Linkage Studies	Yes	No
Rapid Case Ascertainment Studies	Yes	No
Re-Abstracting/Patterns of Care Studies	Yes	No
Survival Studies	No	Yes