South Carolina Central Cancer Registry - CaRI Database

South Carolina CaRI Database Information

Last Reviewed: Nov. 24, 2021

South Carolina Central Cancer Registry

Registry jurisdiction	South Carolina
Type of review required	Both local/state IRB review and Registry review
Type of request forms required	IRB form for both reviews
IRB of record	South Carolina Department of Health and Environmental Control IRB
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	Contact registry during planning phase. Incorporate funds into grant, if needed.
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: 3-6 months
Patient Consent and Contact Procedures	Passive consent with the physician is required before patient contact. Physician consent is obtained by: Registry Patient consent is obtained by: Registry
Pediatric research considerations	None
Registry Fees	Charges for staff time and data https://scdhec.gov/CancerRegistry/Data (see Schedule of Fees - note: this is currently under review for updates) For more information please refer to https://scdhec.gov/CancerRegistry/Data Exceptions: Most student projects (e.g., thesis), some collaborative projects (e.g., SCCCR partner in project)
IRB Fees	No IRB fees
Collaboration with local researcher required	No