New Hampshire State Cancer Registry
Registry Data
- 1,342,850Total Population Count
- 0.4%% of US Population
- 0.1%% of US Black Population
- 0.2%% of US API Population
- 0.0%% of US AI/AN* Population
- 0.1%% of US Hispanic Population
- 0.1%% of US Hispanic Non-White Population
*CHSDA Counties only
- 8,436Malignant Cases
- 0.5%% of US Malignant Cases
NPCR
1987
1995
No
1999-2015
2008-2014
Yes (Restrictions - https://www.naaccr.org/national-interstate-data-exchange-agreement/#16)
Study Participation
| Research Type | Experience with Studies | Interested in Studies |
|---|---|---|
| Case Contacts Studies | Yes | No |
| Geospatial Studies | Yes | Yes |
| Linkage Studies | Yes | Yes |
| Rapid Case Ascertainment Studies | Yes | Yes |
| Re-Abstracting/Patterns of Care Studies | Yes | Yes |
| Survival Studies | Yes | Yes |
Contact Information
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Required Review(s) and Initial Contact
Registry review only
No
Cancer Registry
Registry Review Requirements
Registry Data Request Form URL(s)| URL | Description | |
|---|---|---|
| https://www.dhhs.nh.gov/sites/g/files/ehbemt476/files/documents/2021-11/cancer-confidential.pdf | Data Request Form |
As needed
| URL | Description | |
|---|---|---|
| https://www.dhhs.nh.gov/programs-services/disease-prevention/cancer/cancer-registry | under Resources select NH State Cancer Registry; choose "For Researchers" from left menu to find forms | |
| https://www.dhhs.nh.gov/sites/g/files/ehbemt476/files/documents/2021-11/cancer-confidential.pdf | direct link to data release and data use |
| URL | Description | |
|---|---|---|
| https://www.dhhs.nh.gov/programs-services/disease-prevention/cancer/cancer-registry | under Resources select NH State Cancer Registry; choose "For Researchers" from left menu to find forms | |
| https://www.dhhs.nh.gov/sites/g/files/ehbemt476/files/documents/2021-11/cancer-confidential.pdf | direct link to data release and data use |
Data Use and Renewal Requirements
Annual justification to retain data is required; At end of study; As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement)
Yes
Notarized documentation of data destruction required.
30 days in advance
Annual renewal request required. DSA does not have to be re-executed.
Annual
30 days
Yes
Consent Requirements
Depends on Study
Researcher
Researcher
No
Registry fees
Yes
data fee exceptions are negotiable
After researcher receives data
There is no charge for data per se. There are charges for work needed to conduct data linkages, to execute complex protocols or agreements where the work goes beyond a simple provision of data. The registry then charges hourly for staff time.
IRB fees
No