Last Reviewed: Dec. 4, 2023

Tennessee Cancer Registry

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Registry Data

Population Data

6,651,766Total Population Count
2.1%% of US Population
2.6%% of US Black Population
0.7%% of US API Population
0.0%% of US AI/AN* Population
0.6%% of US Hispanic Population
0.7%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data

37,469Malignant Cases
2.2%% of US Malignant Cases

Registry type

NPCR/SEER

Year registry became population-based

1986

First year high quality, population-based data available for research

2004

Data linked with medicare

Years included in CINA Deluxe

2004-2015

CINA survial years

2008-2014

Participates in the National Interstate Data Exchange Agreement program

Yes (Restrictions - https://www.naaccr.org/national-interstate-data-exchange-agreement/#27)

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	Yes	Yes
Geospatial Studies	Yes	Yes
Linkage Studies	Yes	Yes
Rapid Case Ascertainment Studies	Yes	Yes
Re-Abstracting/Patterns of Care Studies	Yes	Yes
Survival Studies	Yes	Yes

Contact Information

Required Review(s) and Initial Contact

Type of review required

Local/state IRB review only

Multiple local IRBs are required (e.g. Institutional registry and state registry)?

Yes

Initial cancer registry contact/discussion required prior to submitting (or completing) application

Data request submission first step

IRB

Local/State IRB Review Requirements

IRB of record

Tennessee Department of Health

IRB Federalwide Assurance Number

00000379

IRB forms available online

Yes

IRB homepage URL

https://www.tn.gov/health/health-program-areas/tennessee-department-of-health-institutional-review-board.html

Method to submit IRB forms

Online submission

Online IRB submission URL

https://tdh.imedris.net

IRB meeting frequency

Monthly

Process

Processing timeframe for linkage studies and de-identified data release

N/A

Processing timeframe for patient contact studies

N/A

Human Subjects Protection Training Requirements

Yes

Collaboration with local researcher required

Initial required documentation

Step-by-Step data request submission process

Other requirements and helpful information for researchers

Procedures are likely to be revised within the next year

Data Use and Renewal Requirements

When must study investigators destroy registry data

As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement)

Is notification of data destruction required

Yes

Describe what to include in the notification or provide the URL for a specific form

Notification to IRB once data destroyed

Publication review requirements

N/A

Data use agreement renewal requirements

As agreed upon during review process

IRB progress report requirements

As per IRB approval letter

How far in advance of IRB expiration must IRB renewal be submitted

More than 60 days

Participates in VPR

Yes

Consent Requirements

Physician consent is required before patient contact

Patient consent is obtained by

Researcher

Pediatric research special requirements

Registry fees

Registry fees are charged to obtain data

IRB fees

IRB review fees required

Tennessee CaRI Database Information