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Indiana CaRI Database Information

Last Reviewed: Nov. 17, 2020

Indiana State Cancer Registry



Registry Data

Population Data
  • 6,637,989Total Population Count
  • 2.1%% of US Population
  • 1.5%% of US Black Population
  • 0.8%% of US API Population
  • 0.2%% of US AI/AN* Population
  • 0.8%% of US Hispanic Population
  • 0.8%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data
  • 35,471Malignant Cases
  • 2.1%% of US Malignant Cases

NPCR

1987

1995

No

1998-2015

2008-2014

Yes

Study Participation

Research TypeExperience with StudiesInterested in Studies
Case Contacts Studies No No
Geospatial Studies Yes Yes
Linkage Studies Yes Yes
Rapid Case Ascertainment Studies No No
Re-Abstracting/Patterns of Care Studies No No
Survival Studies No Yes

Contact Information

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Required Review(s) and Initial Contact

Registry review only

No

Cancer Registry

Registry Review Requirements

Registry Data Request Form URL(s)
URL Description
https://www.in.gov/health/cdpc/cancer/cancer-registry/policy-and-procedure-manuals/ Contact registry for list of documents to submit

Email

Other

Registry Data Release Policy/Procedure URL(s)
URL Description
https://www.in.gov/health/cdpc/cancer/cancer-registry/policy-and-procedure-manuals/ Policy and Procedure Manuals
Registry Data Use (or Research) Agreement URL(s)
URL Description
https://www.in.gov/iara/2362.htm General State Forms Online Catalog
https://forms.in.gov/download.aspx?id=9858 State Form 52104

Process

1 - 3 months

N/A

No

No

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• Updates on studies and analyses are required every 6 months
• Any new researchers having access to the data must be updated on State Form 52104 and submitted to the registry contact
If applicable, current IRB approval for continuation must be maintained, and updates should be submitted to the registry contact

No

Data Use and Renewal Requirements

As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement); At end of study

No

N/A

Annual

Annual

N/A

Yes

Consent Requirements

Yes - Active

Researcher

Researcher

No

Registry fees

No

IRB fees

No