Kentucky Cancer Registry

Last Reviewed: Feb. 8, 2019

Registry jurisdiction	Kentucky
Type of review required	Registry review only
IRB of record	IRB of researcher affiliate institution
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Online submission
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers
Processing timeframe	For linkage studies and de-identified data release: Less than 1 month For patient contact studies: 1 - 3 months
Patient Consent and Contact Procedures	Passive consent with the physician is required before patient contact. Physician consent is obtained by: Registry Patient consent is obtained by: Researcher
Pediatric research considerations	None
Registry Fees	Fees are charged for data linkage studies and for patient recruitment. The fees are determined based on registry staff time. A conference call with registry staff and the researcher must be scheduled prior to applying for access to data in order to calculate a specific fee. Exceptions: N/A
IRB Fees	No IRB fees
Collaboration with local researcher required	No

Kentucky CaRI Database Information