State Health Registry of Iowa
- 3,130,369Total Population Count
- 0.3%% of US Black Population
- 0.4%% of US API Population
- 0.2%% of US AI/AN* Population
- 0.3%% of US Hispanic Population
- 0.3%% of US Hispanic Non-White Population
*CHSDA Counties only
- 18,582Malignant Cases
- 1.1%% of US Malignant Cases
|Experience with Studies
|Interested in Studies
|Case Contacts Studies
|Rapid Case Ascertainment Studies
|Re-Abstracting/Patterns of Care Studies
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Required Review(s) and Initial Contact
Both local/state IRB review and Registry review
Separate IRB and Registry forms
Local/State IRB Review Requirements
University of Iowa Institutional Review Board
Registry Review RequirementsRegistry Data Request Form URL(s)
|send an email to Dr. Charlton or Dr. Bentler
|Our Data Release Policy is not currently on our website. Contact the Principal Investigator or Registry Director for more information.
|Contact the Registry Director (Dr. Bentler) for more information on the DUA process.
Data Use and Renewal Requirements
As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement)
Number of Subjects,
Date of data destruction
Renewal requirements depend on the terms in the data use agreement.
Yes - Passive
Depends on Study
Fees are dependent on the amount of effort/work required by the Iowa Cancer Registry. Studies or requests that require minimal effort may not have any fees.
After researcher receives data
Fees are determined on a case-by-case basis. Registry staff review the protocol or proposal, determine the time/effort required by Iowa Cancer Registry staff and determine fees based upon that review of time/effort.