Iowa CaRI Database Information

Last Reviewed: March 4, 2023

State Health Registry of Iowa

State Laws and Regulations
Registry General Information

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General Information

Registry state statute URL

https://www.legis.iowa.gov/docs/iac/chapter/07-23-2025.641.1.pdf

Registry state statute most recent update

2024

Registry administrative code/regulations URL

https://shri.public-health.uiowa.edu/about-icr/reporting-cancer-in-iowa/

Registry administrative code/regulations most recent update

2024

Registry location

Academic Institution

Cancer Reporting Requirements

Reporting timeframe

More than 6 months from diagnosis

Reporting timeframe notes

Reporting timeframe depends on the facility, but most facilities report within 6-12 months of diagnosis.

How often are facilities required to report?

Less than every 3 months

Reporting frequency notes

For our larger facilities, we ask them to report monthly.

Reporting facilities as defined in law

Hospitals, Physician/Healthcare Providers, Radiation/Radiology Facilities, Laboratories, Ambulatory Care Centers

Reporting facilities as defined in administrative code (regulations)

Hospitals, Physician/Healthcare Providers, Radiation/Radiology Facilities, Laboratories, Ambulatory Care Centers

Pathology reporting required?

No language available

Description of pathology reporting requirements

Electronic reporting required?

Yes

Description of electronic reporting requirements

(1) Those required to report shall submit required data to the Iowa Cancer Registry monthly, in an electronic format specified by the Iowa Cancer Registry. Those required to report may employ registrars with Iowa Cancer Registry-approved training, or contract with the Iowa Cancer Registry or an outside vendor to submit reportable cancer cases and required data elements to the Iowa Cancer Registry.
(2) As needed for SEER surveillance activities, the Iowa Cancer Registry shall have remote electronic
access, where available, or physical access to all cancer-relevant medical records.

Penalties allowed under law or regulations?

Certified Tumor Registrar required

Registry Data

Population Data

3,130,369Total Population Count
1.0%% of US Population
0.3%% of US Black Population
0.4%% of US API Population
0.2%% of US AI/AN* Population
0.3%% of US Hispanic Population
0.3%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data

18,582Malignant Cases
1.1%% of US Malignant Cases

Registry type

SEER

Year registry became population-based

1973

First year high quality, population-based data available for research

1973

Data linked with medicare

Yes

Years included in CINA Deluxe

1995-2015

CINA survial years

2008-2014

Participates in the National Interstate Data Exchange Agreement program

Yes

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	Yes	Yes
Geospatial Studies	Yes	Yes
Linkage Studies	Yes	Yes
Rapid Case Ascertainment Studies	Yes	Yes
Re-Abstracting/Patterns of Care Studies	Yes	Yes
Survival Studies	Yes	Yes