Illinois CaRI Database Information

Last Reviewed: Nov. 25, 2024

Illinois State Cancer Registry

State Laws and Regulations
Registry General Information

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General Information

Registry state statute URL

https://www.ilga.gov/legislation/ilcs/ilcs3.asp?ActID=1571&ChapterID=35

Registry state statute most recent update

Registry administrative code/regulations URL

http://www.ilga.gov/commission/jcar/admincode/077/07700840sections.html

Registry administrative code/regulations most recent update

2007

Registry location

Government Agency

Cancer Reporting Requirements

Reporting timeframe

3-6 months from diagnosis

Reporting timeframe notes

How often are facilities required to report?

Less than every 3 months

Reporting frequency notes

Monthly case submissions are required

Reporting facilities as defined in law

Hospitals, Physician/Healthcare Providers, Radiation/Radiology Facilities, Laboratories, Ambulatory Care Centers, Other

Reporting facilities as defined in law, Other

Nursing homes and other Illinois facilities diagnosing or treating cancer

Reporting facilities as defined in administrative code (regulations)

Hospitals, Physician/Healthcare Providers, Radiation/Radiology Facilities, Laboratories, Ambulatory Care Centers, Other

Reporting facilities as defined in administrative code (regulations), Other

Nursing homes and other Illinois facilities diagnosing or treating cancer

Pathology reporting required?

Yes

Description of pathology reporting requirements

Electronic reporting required?

Yes

Description of electronic reporting requirements

Penalties allowed under law or regulations?

Yes

Penalties

Fines

Description of penalties

Certificate of Need can be held for facilities or healthcare systems that are not compliant with cancer reporting. Monetary fines are also available.

Certified Tumor Registrar required

Registry Data

Population Data

12,813,166Total Population Count
4.0%% of US Population
4.3%% of US Black Population
3.7%% of US API Population
0.0%% of US AI/AN* Population
3.8%% of US Hispanic Population
2.7%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data

69,572Malignant Cases
4.1%% of US Malignant Cases

Registry type

NPCR/SEER

Year registry became population-based

1986

First year high quality, population-based data available for research

1986

Data linked with medicare

Years included in CINA Deluxe

1995-2015

CINA survial years

2008-2014

Participates in the National Interstate Data Exchange Agreement program

Yes

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	Yes	No
Geospatial Studies	Yes	No
Linkage Studies	Yes	No
Rapid Case Ascertainment Studies	Yes	No
Re-Abstracting/Patterns of Care Studies	Yes	No
Survival Studies	No	No