Connecticut Tumor Registry - CaRI Database

Connecticut CaRI Database Information

Last Reviewed: Dec. 1, 2023

Connecticut Tumor Registry

Print Page

Registry jurisdiction	Connecticut
Type of review required	Local/state IRB review only
IRB of record	Connecticut Department of Public Health Human Investigations Committee
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	Patient contact studies may be carried out in collaboration with the Yale Rapid Case Ascertainment Shared Resource (RCA). RCA can also provide assistance with biospecimen research studies and with IRB approval processes. RCA operates on a fee-for-service basis. For further information, go to: https://www.yalecancercenter.org/research/resources/rapid.aspx
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: 1 - 3 months
Patient Consent and Contact Procedures	Active consent with the physician is required before patient contact. Physician consent is obtained by: Registry Patient consent is obtained by: Researcher
Pediatric research considerations	Researchers planning to undertake research involving children should contact the DPH HIC Chair prior to submitting an application. Additional assurances may be required depending on the type of research.
Registry Fees	No registry fees
IRB Fees	No IRB fees
Collaboration with local researcher required	No