Oklahoma Central Cancer Registry - CaRI Database

Oklahoma CaRI Database Information

Last Reviewed: Dec. 5, 2023

Oklahoma Central Cancer Registry

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Registry jurisdiction	Oklahoma
Type of review required	Both local/state IRB review and Registry review
Type of request forms required	Separate IRB and Registry forms
IRB of record	IORG0000576
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to IRB Cancer Registry: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111 IRB via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111 2nd IRB via None
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	It is preferable to check in with OCCR via email prior to completing your data application to ensure that staff have the availability to fulfill the request.
Processing timeframe	For linkage studies and de-identified data release: Greater than 6 months For patient contact studies: N/A
Patient Consent and Contact Procedures	N/A - No patient contact studies
Pediatric research considerations	None
Registry Fees	The Registry Fees mentioned above refer to time spent on conducting linkages with study cohorts. The fees are based on time spent on data request: reviewing instructions, software installation (if applicable), conducting linkages, reviewing possible matches. It is $50/hour, the time/cost would be estimated for the researcher prior for confirmation. After the data linkage has been completed, the researcher will be invoiced for the final cost that would need to be paid prior to receiving the data. For more information please refer to https://oklahoma.gov/health/health-education/chronic-disease-prevention/oklahoma-central-cancer-registry-occr.html Exceptions: None
IRB Fees	No IRB fees
Collaboration with local researcher required	No