Last Reviewed: Nov. 19, 2022

Wyoming Cancer Surveillance Program

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Registry Data

Population Data

581,778Total Population Count
0.2%% of US Population
0.0%% of US Black Population
0.0%% of US API Population
0.4%% of US AI/AN* Population
0.1%% of US Hispanic Population
0.1%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data

2,763Malignant Cases
0.2%% of US Malignant Cases

Registry type

NPCR

Year registry became population-based

1995

First year high quality, population-based data available for research

1996

Data linked with medicare

Years included in CINA Deluxe

1995-2015

CINA survial years

2008-2014

Participates in the National Interstate Data Exchange Agreement program

Yes (Restrictions - https://www.naaccr.org/national-interstate-data-exchange-agreement/#10)

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	No	No
Geospatial Studies	No	Yes
Linkage Studies	Yes	No
Rapid Case Ascertainment Studies	No	No
Re-Abstracting/Patterns of Care Studies	No	Yes
Survival Studies	Yes	No

Contact Information

Required Review(s) and Initial Contact

Type of review required

Both local/state IRB review and Registry review

Multiple local IRBs are required (e.g. Institutional registry and state registry)?

Type of request forms required

IRB form for both reviews

Initial cancer registry contact/discussion required prior to submitting (or completing) application

Yes

Data request submission first step

Cancer Registry

Local/State IRB Review Requirements

IRB of record

IRB00003618

IRB Federalwide Assurance Number

FWA00005562

IRB forms available online

Yes

IRB homepage URL

https://health.wyo.gov/admin/irb/

Method to submit IRB forms

IRB meeting frequency

Monthly

Registry Review Requirements

Registry Data Request Form URL(s)

No URLs specified.

Method to submit Registry data request

Registry review meeting frequency

As needed

Registry Data Release Policy/Procedure URL(s)

No URLs specified.

Registry Data Use (or Research) Agreement URL(s)

No URLs specified.

Process

Processing timeframe for linkage studies and de-identified data release

1 - 3 months

Processing timeframe for patient contact studies

1 - 3 months

Human Subjects Protection Training Requirements

Collaboration with local researcher required

Yes

Initial required documentation

Step-by-Step data request submission process

Other requirements and helpful information for researchers

Procedures are likely to be revised within the next year

Yes

Data Use and Renewal Requirements

When must study investigators destroy registry data

As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement); Annual justification to retain data is required; At end of study

Is notification of data destruction required

Publication review requirements

60 days in advance

Data use agreement renewal requirements

Annual

IRB progress report requirements

Annual

How far in advance of IRB expiration must IRB renewal be submitted

More than 60 days

Participates in VPR

Yes

Consent Requirements

Physician consent is required before patient contact

Depends on Study

Physician consent is obtained by

Depends on Study

Patient consent is obtained by

Depends on Study

Pediatric research special requirements

Yes

Describe pediatric research considerations

Depends on study

Registry fees

Registry fees are charged to obtain data

IRB fees

IRB review fees required

Wyoming CaRI Database Information

Wyoming Cancer Surveillance Program

Registry Data

Study Participation

Contact Information

Required Review(s) and Initial Contact

Local/State IRB Review Requirements

Registry Review Requirements

Process

Data Use and Renewal Requirements

Consent Requirements

Registry fees

IRB fees