Last Reviewed: Nov. 21, 2024

New Mexico Tumor Registry

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Registry Data

Population Data

2,091,002Total Population Count
0.7%% of US Population
0.1%% of US Black Population
0.2%% of US API Population
9.1%% of US AI/AN* Population
1.8%% of US Hispanic Population
1.3%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data

9,432Malignant Cases
0.6%% of US Malignant Cases

Registry type

SEER

Year registry became population-based

1969

First year high quality, population-based data available for research

1969

Data linked with medicare

Yes

Years included in CINA Deluxe

1995-2012

CINA survial years

2008-2014

Participates in the National Interstate Data Exchange Agreement program

Yes

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	Yes	Yes
Geospatial Studies	Yes	Yes
Linkage Studies	Yes	Yes
Rapid Case Ascertainment Studies	Yes	Yes
Re-Abstracting/Patterns of Care Studies	Yes	Yes
Survival Studies	Yes	Yes

Contact Information

Required Review(s) and Initial Contact

Type of review required

Both local/state IRB review and Registry review

Multiple local IRBs are required (e.g. Institutional registry and state registry)?

Type of request forms required

No forms, just specific documents or information

Initial cancer registry contact/discussion required prior to submitting (or completing) application

Yes

Data request submission first step

Cancer Registry

Local/State IRB Review Requirements

IRB of record

University of New Mexico Human Resarch Review Committee

IRB Federalwide Assurance Number

FWA00003255

IRB forms available online

Yes

IRB homepage URL

https://hsc.unm.edu/research/compliance/hrpo/

Method to submit IRB forms

Online submission

Online IRB submission URL

https://hsc.unm.edu/research/compliance/hrpo/

IRB meeting frequency

Weekly

Registry Review Requirements

Registry Data Request Form URL(s)

URL	Description
https://hsc.unm.edu/new-mexico-tumor-registry/contact/	Contact Angela Meisner for more information

Method to submit Registry data request

Registry review meeting frequency

As needed

Registry Data Release Policy/Procedure URL(s)

URL	Description
https://hsc.unm.edu/new-mexico-tumor-registry/contact/	Please contact Angela Meisner for more information

Registry Data Use (or Research) Agreement URL(s)

URL	Description
https://hsc.unm.edu/new-mexico-tumor-registry/contact/	Please contact Angela Meisner for more information

Process

Processing timeframe for linkage studies and de-identified data release

3-6 months

Processing timeframe for patient contact studies

3-6 months

Human Subjects Protection Training Requirements

Yes

Collaboration with local researcher required

Yes

Initial required documentation

Step-by-Step data request submission process

Other requirements and helpful information for researchers

Procedures are likely to be revised within the next year

Data Use and Renewal Requirements

When must study investigators destroy registry data

As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement)

Is notification of data destruction required

Yes

Describe what to include in the notification or provide the URL for a specific form

Please contact Angela Meisner (awmeisner@salud.unm.edu) for more information.

Publication review requirements

30 days in advance

Data use agreement renewal requirements

Renewal requirements may vary by agreement.

IRB progress report requirements

Annual

How far in advance of IRB expiration must IRB renewal be submitted

60 days

Participates in VPR

Yes

Consent Requirements

Physician consent is required before patient contact

Depends on Study

Physician consent is obtained by

Registry

Patient consent is obtained by

Depends on Study

Pediatric research special requirements

Yes

Describe pediatric research considerations

Vulnerable populations require special considerations.

Registry fees

Registry fees are charged to obtain data

Yes

Registry data fee exceptions

Depends on study

Registry data payment is due

Before researcher receives data

Registry fee structure summary

Depends on the study -- contact Angela Meisner (awmeisner@salud.unm.edu) for more information.

Registry fee structure URL

IRB fees

IRB review fees required

New Mexico CaRI Database Information