Last Reviewed: Feb. 7, 2019

Washington State Cancer Registry

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Registry Data

Population Data

7,292,062Total Population Count
2.3%% of US Population
0.8%% of US Black Population
3.7%% of US API Population
6.5%% of US AI/AN* Population
1.6%% of US Hispanic Population
1.9%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data

37,095Malignant Cases
2.2%% of US Malignant Cases

Registry type

NPCR

Year registry became population-based

1992

First year high quality, population-based data available for research

1992

Data linked with medicare

Years included in CINA Deluxe

1995-2015

CINA survial years

2008-2014

Participates in the National Interstate Data Exchange Agreement program

Yes

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	Yes	Yes
Geospatial Studies	Yes	Yes
Linkage Studies	Yes	Yes
Rapid Case Ascertainment Studies	No	Yes
Re-Abstracting/Patterns of Care Studies	No	Yes
Survival Studies	Yes	Yes

Contact Information

Required Review(s) and Initial Contact

Type of review required

Local/state IRB review only

Multiple local IRBs are required (e.g. Institutional registry and state registry)?

Initial cancer registry contact/discussion required prior to submitting (or completing) application

Yes

Data request submission first step

Both Registry and IRB

Local/State IRB Review Requirements

IRB of record

WSIRB - Washington State Institutional Review Board

IRB Federalwide Assurance Number

IRB forms available online

Yes

IRB homepage URL

https://www.dshs.wa.gov/ffa/human-research-review-section/forms

Method to submit IRB forms

IRB meeting frequency

Monthly

Process

Processing timeframe for linkage studies and de-identified data release

Greater than 6 months

Processing timeframe for patient contact studies

Greater than 6 months

Human Subjects Protection Training Requirements

Yes

Collaboration with local researcher required

Initial required documentation

Step-by-Step data request submission process

Other requirements and helpful information for researchers

Please contact Mahesh Keitheri Cheteri - Mahesh.KeitheriCheteri@doh.wa.gov

Procedures are likely to be revised within the next year

Data Use and Renewal Requirements

When must study investigators destroy registry data

At end of study

Is notification of data destruction required

Yes

Describe what to include in the notification or provide the URL for a specific form

Please contact Mahesh Keitheri Cheteri - Mahesh.KeitheriCheteri@doh.wa.gov

Publication review requirements

60 days in advance

Data use agreement renewal requirements

Annual

IRB progress report requirements

Annual

How far in advance of IRB expiration must IRB renewal be submitted

30 days

Participates in VPR

Consent Requirements

Physician consent is required before patient contact

Patient consent is obtained by

Registry

Pediatric research special requirements

Registry fees

Registry fees are charged to obtain data

Yes

Registry data fee exceptions

Registry data payment is due

After researcher receives data

Registry fee structure summary

There are fees for Patient Contact Research Studies, these are only based on actual time and expense. Please contact WSCR to discuss your study. 360-236-3669

Registry fee structure URL

IRB fees

IRB review fees required

Yes

Irb data fee exceptions

You can ask for a waiver of fees in certain circumstances. Please visit WSIRB website for fee schedule. IRB fees must be paid before IRB review.

IRB fee amounts

https://www.dshs.wa.gov/ffa/human-research-review-section/wsirb-fees

Washington CaRI Database Information