Fred Hutchinson Cancer Research Center - CaRI Database

Seattle CaRI Database Information

Last Reviewed: Jan. 17, 2024

Fred Hutchinson Cancer Research Center

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Registry jurisdiction	Seattle
Type of review required	Both local/state IRB review and Registry review
Type of request forms required	Separate IRB and Registry forms
IRB of record	Fred Hutchinson Cancer Center
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: 1 - 3 months
Patient Consent and Contact Procedures	Patient consent is obtained by: Researcher
Pediatric research considerations	Children and those individuals who are not competent to provide consent should be given the opportunity to assent to participate in the research project. Assent is a knowledgeable agreement to participate in the project. Adequate provisions should be made for soliciting the independent, non-coerced assent from children or cognitively impaired persons who are capable of a knowledgeable agreement. In general, the IRB recommends that children age seven and older, and most cognitively impaired adults, be given the opportunity to assent.
Registry Fees	Information not available
IRB Fees	https://extranet.fredhutch.org/en/u/irb/irb-fees.html
Collaboration with local researcher required	Yes