Skip to Main Content

Seattle CaRI Database Information

Last Reviewed: Jan. 17, 2024

Fred Hutchinson Cancer Research Center


Registry jurisdiction Seattle
Type of review required Both local/state IRB review and Registry review
Type of request forms required Separate IRB and Registry forms
IRB of record Fred Hutchinson Cancer Center
How to submit request:
Initial required documentation

Login is required to access this information. Log In with your MyNAACCR account.

Step-by-Step data request submission process

Login is required to access this information. Log In with your MyNAACCR account.

Other requirements and helpful information for researchers
Processing timeframe
  • For linkage studies and de-identified data release: 1 - 3 months
  • For patient contact studies: 1 - 3 months
Patient Consent and Contact Procedures
  • Patient consent is obtained by: Researcher
Pediatric research considerations Children and those individuals who are not competent to provide consent should be given the opportunity to assent to participate in the research project. Assent is a knowledgeable agreement to participate in the project. Adequate provisions should be made for soliciting the independent, non-coerced assent from children or cognitively impaired persons who are capable of a knowledgeable agreement. In general, the IRB recommends that children age seven and older, and most cognitively impaired adults, be given the opportunity to assent.
Registry Fees Information not available

IRB Fees https://extranet.fredhutch.org/en/u/irb/irb-fees.html

Collaboration with local researcher required Yes