Last Reviewed: Jan. 18, 2024

Arkansas Central Cancer Registry

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Registry Data

Population Data

2,989,287Total Population Count
0.9%% of US Population
1.1%% of US Black Population
0.3%% of US API Population
0.0%% of US AI/AN* Population
0.4%% of US Hispanic Population
0.3%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data

17,464Malignant Cases
1.0%% of US Malignant Cases

Registry type

NPCR

Year registry became population-based

1997

First year high quality, population-based data available for research

1997

Data linked with medicare

Years included in CINA Deluxe

2001-2015

CINA survial years

2008-2014

Participates in the National Interstate Data Exchange Agreement program

Yes

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	Yes	No
Geospatial Studies	Yes	No
Linkage Studies	Yes	No
Rapid Case Ascertainment Studies	No	No
Re-Abstracting/Patterns of Care Studies	No	No
Survival Studies	Yes	No

Contact Information

Required Review(s) and Initial Contact

Type of review required

Registry review only

Initial cancer registry contact/discussion required prior to submitting (or completing) application

Data request submission first step

Cancer Registry

Registry Review Requirements

Registry Data Request Form URL(s)

URL	Description
https://adhredcap.arkansas.gov/redcap/surveys/?s=4EJMY7PAR9	Data Request Form

Method to submit Registry data request

Registry review meeting frequency

Monthly

Registry Data Release Policy/Procedure URL(s)

URL	Description
https://www.healthy.arkansas.gov/images/uploads/pdf/Arkansas_Board_of_Health_Statewide_Cancer_Registry_Act.pdf

Registry Data Use (or Research) Agreement URL(s)

URL	Description
https://www.healthy.arkansas.gov/programs-services/topics/arkansas-cancer-registry	ACCR Website

Process

Processing timeframe for linkage studies and de-identified data release

1 - 3 months

Processing timeframe for patient contact studies

Greater than 6 months

Human Subjects Protection Training Requirements

Yes

Collaboration with local researcher required

Initial required documentation

Step-by-Step data request submission process

Other requirements and helpful information for researchers

A Memo-of-Agreement which includes a Data Use Agreement between the Arkansas Dept. of Health and the requestor; and cost of the work involved in a linkage or case-listing is required.

Procedures are likely to be revised within the next year

Data Use and Renewal Requirements

When must study investigators destroy registry data

At end of study

Is notification of data destruction required

Yes

Describe what to include in the notification or provide the URL for a specific form

Notification to the Cancer Registry

Publication review requirements

N/A

Data use agreement renewal requirements

Annual

IRB progress report requirements

Annual

How far in advance of IRB expiration must IRB renewal be submitted

30 days

Participates in VPR

Yes

Consent Requirements

Physician consent is required before patient contact

Patient consent is obtained by

Registry

Pediatric research special requirements

Yes

Describe pediatric research considerations

Parents would have to be contacted by the Cancer Registry for active consent.

Registry fees

Registry fees are charged to obtain data

Yes

Registry data fee exceptions

fees on a case by case basis

Registry data payment is due

After researcher receives data

Registry fee structure summary

Case by case basis. Must contact registry for information.

Registry fee structure URL

IRB fees

IRB review fees required

Arkansas CaRI Database Information