Alabama Statewide Cancer Registry - CaRI Database

Alabama CaRI Database Information

Last Reviewed: Nov. 29, 2023

Alabama Statewide Cancer Registry

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Registry jurisdiction	Alabama
Type of review required	Registry review only
IRB of record	IRB of researcher affiliate institution
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Mail to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	Patient contact studies for patients under 18 require active physician consent. Patient contact studies for patients over 18 can use passive physician consent. The ASCR is required to give physicians a minimum of 6 weeks to respond for physician consent. For NAACCR: Please add a 4th category for IRB and Registry. This category would need to be for registry approval and state approval. The DOAR committee is not the full ADPH IRB and as such I could not fill out the required fields or IRB.
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: 3-6 months
Patient Consent and Contact Procedures	Passive consent with the physician is required before patient contact. Physician consent is obtained by: Registry Patient consent is obtained by: Researcher
Pediatric research considerations	All pediatric studies require active consent.
Registry Fees	The ASCR has a set fee structure but does not publish it. Justin will be more than happy to go over the fee structure during the conference call to discuss the project. For more information please refer to http://feestructureisnotonline.com Exceptions: None
IRB Fees	No IRB fees
Collaboration with local researcher required	No