California Cancer Registry - CaRI Database

California CaRI Database Information

Last Reviewed: Dec. 19, 2022

California Cancer Registry

Registry jurisdiction	California
Type of review required	Both local/state IRB review and Registry review
Type of request forms required	Separate IRB and Registry forms
IRB of record	California Committee for the Protection of Human Subjects (CPHS)
How to submit request:	Researcher should submit request to Both Registry and IRB Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111 IRB via Online submission 2nd IRB via None
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	Researcher should notify CCR via e-mail if CCR data is still needed to complete the approved study. Current approvals from CPHS and institutional IRB are required to retain the data . Please verify timeline for submission of application directly with CPHS.
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: 1 - 3 months
Patient Consent and Contact Procedures	Patient consent is obtained by: Researcher
Pediatric research considerations	None
Registry Fees	Contact CCR at hs-ccrresearch@ou.ad3.ucdavis.edu for current fees. Fees for data linkages depend on the number of records to be linked and, if statewide files other than CCR (birth, hospital discharge, etc.) fees depend on the number of records and the number of years of statewide data to be linked. For more information please refer to https://www.ccrcal.org/retrieve-data/data-for-researchers/data-preparation-costs/ Exceptions: None
IRB Fees	No IRB fees
Collaboration with local researcher required	No