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Louisiana CaRI Database Information

Last Reviewed: Nov. 27, 2023

Louisiana Tumor Registry

Registry Data

Population Data
  • 4,663,405Total Population Count
  • 1.5%% of US Population
  • 3.4%% of US Black Population
  • 0.5%% of US API Population
  • 0.2%% of US AI/AN* Population
  • 0.4%% of US Hispanic Population
  • 0.6%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data
  • 25,874Malignant Cases
  • 1.5%% of US Malignant Cases







Yes (Restrictions -

Study Participation

Research TypeExperience with StudiesInterested in Studies
Case Contacts Studies Yes Yes
Geospatial Studies Yes Yes
Linkage Studies Yes Yes
Rapid Case Ascertainment Studies Yes Yes
Re-Abstracting/Patterns of Care Studies Yes Yes
Survival Studies Yes Yes

Contact Information

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Required Review(s) and Initial Contact

Both local/state IRB review and Registry review


Separate IRB and Registry forms


Cancer Registry

Local/State IRB Review Requirements

Louisiana State University Health Sciences Center - New Orleans's Human Subjects Research Protection Program and Institutional Review Board

FWA 00002762


Online submission


Registry Review Requirements

Registry Data Request Form URL(s)
URL Description Contact Lauren Maniscalco at for more information on the LTR’s data release policies. Aggregated Data Requests

Online submission


Registry Data Release Policy/Procedure URL(s)
URL Description For case-level data requests, researchers are asked to contact Lauren Maniscalco at for more information on the LTR’s data release policies.
Registry Data Use (or Research) Agreement URL(s)
URL Description available upon request


3-6 months

Greater than 6 months



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If the LTR is not participating in the research (i.e. only conducting the linkage but not analyzing data or preparing manuscripts), IRB approval from LSUHSC is not required, because this is not considered human subjects' research for LTR. However, IRB approval would be required from the researcher's institution if human subjects' research is being conducted.


Data Use and Renewal Requirements

Annual justification to retain data is required; At end of study; As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement)


Project Title, name of dataset received, date of dataset destruction, method of data destruction (example: File Shredder Software), institution name, and individual's name.

Please include: Through this email, I confirm that all electronic data received from the Louisiana Tumor Registry was securely destroyed via [method/software] on [date] and all LTR data in hardcopy or printed format were destroyed using a cross-cut shredder or an equivalent destruction method on [date].

60 days in advance

DUAs do not need to be renewed annually, but individual confidentiality agreements must be signed each year.


30 days


Consent Requirements

Depends on Study




Parent consent is required.

Registry fees


There is no charge for aggregated data requests or case-level data requests in which LTR investigators are included as collaborators.

After researcher receives data

For linkage projects, the fee is calculated based on the number of records needing to be linked or staff time to complete the linkage. For patient survey projects, the fee is calculated based on staff time, supplies, and other related costs.

IRB fees


IRB Protocol Review Fee Policy: It is the policy of LSUHSC-NO to charge for IRB review of industry-sponsored studies as a mechanism to support the administrative costs of such reviews. Non LSUHSC-NO sites in federally sponsored multicenter clinical research studies for which the LSUHSC-NO IRB has agreed to provide oversight as the Single IRB of record are also charged fees to cover costs that would not otherwise be incurred.