Louisiana CaRI Database Information

Last Reviewed: Nov. 27, 2023

Louisiana Tumor Registry

State Laws and Regulations
Registry General Information

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General Information

Registry state statute URL

http://sph.lsuhsc.edu/wp-content/uploads/2018/11/LTR_law_all_pages.pdf

Registry state statute most recent update

2017

Registry administrative code/regulations URL

https://sph.lsuhsc.edu/wp-content/uploads/2018/02/LAC-Louisiana-Tumor-Registry_January-2018.pdf

Registry administrative code/regulations most recent update

2018

Registry location

Academic Institution

Cancer Reporting Requirements

Reporting timeframe

3-6 months from diagnosis

Reporting timeframe notes

This depends on the type of facility reporting. More details can be found here: https://sph.lsuhsc.edu/louisiana-tumor-registry/cancer-reporting/

How often are facilities required to report?

Less than every 3 months

Reporting frequency notes

While this does vary from facility to facility depending on case volume, most facilities are required to report monthly in compliance with the LTR Timely Data Reporting Calendar: https://sph.lsuhsc.edu/wp-content/uploads/2023/10/LTR-Timely-Data-Reporting-Calendar2023_UPDATED_10312023.pdf

Reporting facilities as defined in law

Hospitals, Physician/Healthcare Providers, Radiation/Radiology Facilities, Laboratories, Ambulatory Care Centers, Other

Reporting facilities as defined in law, Other

Nursing homes & hospices

Reporting facilities as defined in administrative code (regulations)

Hospitals, Physician/Healthcare Providers, Radiation/Radiology Facilities, Laboratories, Ambulatory Care Centers, Other

Reporting facilities as defined in administrative code (regulations), Other

Nursing homes & hospices

Pathology reporting required?

Yes

Description of pathology reporting requirements

HL7 format preferred; small laboratories can report via fax or PDF

Electronic reporting required?

Yes

Description of electronic reporting requirements

Remote electronic access where available; CDA reports from EHRs

Penalties allowed under law or regulations?

Yes

Penalties

Fines, Reimburse for Costs

Description of penalties

The facility shall reimburse the Louisiana Tumor Registry or its contractor $45 per case or the actual cost of screening, abstracting, coding, and editing, whichever is greater. Facilities refusing to cooperate within one month of the LTR's request for cancer reporting may be fined. Fines accrue daily after this one month of Noncooperation at $100 per day, with a cap of $5000 total. Money from fines accrue to the LTR account, for LTR operations. The LTR may take legal action if necessary to enforce compliance with the law.

Certified Tumor Registrar required

Registry Data

Population Data

4,663,405Total Population Count
1.5%% of US Population
3.4%% of US Black Population
0.5%% of US API Population
0.2%% of US AI/AN* Population
0.4%% of US Hispanic Population
0.6%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data

25,874Malignant Cases
1.5%% of US Malignant Cases

Registry type

NPCR/SEER

Year registry became population-based

1988

First year high quality, population-based data available for research

1995

Data linked with medicare

Yes

Years included in CINA Deluxe

1995-2015

CINA survial years

2008-2014

Participates in the National Interstate Data Exchange Agreement program

Yes (Restrictions - https://www.naaccr.org/national-interstate-data-exchange-agreement/#19)

Study Participation

Research Type	Experience with Studies	Interested in Studies
Case Contacts Studies	Yes	Yes
Geospatial Studies	Yes	Yes
Linkage Studies	Yes	Yes
Rapid Case Ascertainment Studies	Yes	Yes
Re-Abstracting/Patterns of Care Studies	Yes	Yes
Survival Studies	Yes	Yes