Missouri Cancer Registry and Research Center - CaRI Database

Missouri CaRI Database Information

Last Reviewed: March 11, 2021

Missouri Cancer Registry and Research Center

Registry jurisdiction	Missouri
Type of review required	Local/state IRB review only
IRB of record	https://health.mo.gov/data/irb/, 2nd IRB: https://research.missouri.edu/irb/
How to submit request:	Researcher should submit request to Cancer Registry John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: Greater than 6 months
Patient Consent and Contact Procedures	Active consent with the physician is required before patient contact. Physician consent is obtained by: Registry Patient consent is obtained by: Registry
Pediatric research considerations	Additional requirements
Registry Fees	Our basic fee schedule for linkages is based on the number of records please review access-to-data fee structure on our website. There is an additional fee for lower data quality (defined as more than 10% of the records containing incorrect or missing values in any of the main linkage variables: first name, last name, sex, date of birth, and Social Security number) since that results in a higher manual review effort; and there are some miscellaneous fees for any unusual aspects that would cause extra work, but these are expected to usually not be relevant. For more information please refer to https://medicine.missouri.edu/centers-institutes-labs/cancer-registry-research-center/resources/access-to-data Exceptions: NA
IRB Fees	No IRB fees
Collaboration with local researcher required	No