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Missouri CaRI Database Information

Last Reviewed: March 11, 2021

Missouri Cancer Registry and Research Center

Registry jurisdiction Missouri
Type of review required Local/state IRB review only
IRB of record, 2nd IRB:
How to submit request:
Initial required documentation

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Step-by-Step data request submission process

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Other requirements and helpful information for researchers
Processing timeframe
  • For linkage studies and de-identified data release: 1 - 3 months
  • For patient contact studies: Greater than 6 months
Patient Consent and Contact Procedures
  • Active consent with the physician is required before patient contact. Physician consent is obtained by: Registry
  • Patient consent is obtained by: Registry
Pediatric research considerations Additional requirements
Registry Fees Our basic fee schedule for linkages is based on the number of records please review access-to-data fee structure on our website. There is an additional fee for lower data quality (defined as more than 10% of the records containing incorrect or missing values in any of the main linkage variables: first name, last name, sex, date of birth, and Social Security number) since that results in a higher manual review effort; and there are some miscellaneous fees for any unusual aspects that would cause extra work, but these are expected to usually not be relevant. For more information please refer to

Exceptions: NA
IRB Fees No IRB fees
Collaboration with local researcher required No