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Nevada CaRI Database Information

Last Reviewed: Dec. 1, 2023

Nevada Statewide Cancer Registry



Registry Data

Population Data
  • 2,919,875Total Population Count
  • 0.9%% of US Population
  • 0.7%% of US Black Population
  • 1.4%% of US API Population
  • 2.3%% of US AI/AN* Population
  • 1.4%% of US Hispanic Population
  • 1.3%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data
  • 12,878Malignant Cases
  • 0.8%% of US Malignant Cases

NPCR

1995

1995

Yes

1997-2010

Yes (Restrictions - https://www.naaccr.org/national-interstate-data-exchange-agreement/#33)

Study Participation

Research TypeExperience with StudiesInterested in Studies
Case Contacts Studies Yes No
Geospatial Studies Yes No
Linkage Studies Yes No
Rapid Case Ascertainment Studies No No
Re-Abstracting/Patterns of Care Studies No No
Survival Studies No No

Contact Information

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Required Review(s) and Initial Contact

Registry review only

No

Cancer Registry

Registry Review Requirements

Registry Data Request Form URL(s)
URL Description
https://dpbh.nv.gov/Programs/NCCR/Nevada_Central_Cancer_Registry_(NCCR)_-Home/

Email

Quarterly

Registry Data Release Policy/Procedure URL(s)
URL Description
https://www.leg.state.nv.us/NRS/NRS-457.html NRS 457
https://www.leg.state.nv.us/NAC/NAC-457.html NAC 457
Registry Data Use (or Research) Agreement URL(s)
URL Description
http://dhhs.nv.gov/uploadedFiles/dhhsnvgov/content/Programs/Office_of_Analytics/Images/Data_Request_Form.pdf Data Request Form

Process

1 - 3 months

N/A

No

No

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It is important to stress the review and approval requirements of proposed publications based on cancer registry data per NAC 457.140. Researchers who willfully violate these provisions after having signed a statement acknowledging them may incur legal liability for their conduct.

No

Data Use and Renewal Requirements

As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement)

Yes

No form or URL

90 days in advance

Annual

None

N/A

Yes

Consent Requirements

No

Researcher

Yes

Parental consent would be required instead of patient consent for confidential, personal identifying information from the registry.

Registry fees

Yes

No exceptions

After researcher receives data

NAC 457 section 2. medical researcher who obtains data from the registry, a fee of $200 or the actual cost of providing the data, whichever is more. We usually follow the formula from NCI.

IRB fees

No