New Jersey State Cancer Registry - CaRI Database

New Jersey CaRI Database Information

Last Reviewed: Jan. 31, 2024

New Jersey State Cancer Registry

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Registry jurisdiction	New Jersey
Type of review required	Both local/state IRB review and Registry review
Type of request forms required	Separate IRB and Registry forms
IRB of record	Rutgers Biomedical and Health Sciences
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	For patient contact studies: + NJSCR will make the first contact to patients + Patients are only contacted for one study at a time
Processing timeframe	For linkage studies and de-identified data release: Greater than 6 months For patient contact studies: Greater than 6 months
Patient Consent and Contact Procedures	Depending on the study, consent with the physician is required before patient contact. Physician consent is obtained by: Registry Patient consent is obtained by: Registry
Pediatric research considerations	None
Registry Fees	Contact the Registry for more information as fees vary based on work required. Exceptions: Contact the Registry for more information as fees vary based on work required.
IRB Fees	https://research.rutgers.edu/ Exceptions: NIH and certain other federal or state funded projects may be exempt from IRB fees. Reach out to us for questions.
Collaboration with local researcher required	Yes