New Jersey State Cancer Registry - CaRI Database

New Jersey CaRI Database Information

Last Reviewed: Jan. 31, 2024

New Jersey State Cancer Registry

Registry jurisdiction	New Jersey
Type of review required	Both local/state IRB review and Registry review
Type of request forms required	Separate IRB and Registry forms
IRB of record	Rutgers Biomedical and Health Sciences
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers
Processing timeframe	For linkage studies and de-identified data release: Greater than 6 months For patient contact studies: Greater than 6 months
Patient Consent and Contact Procedures	Depending on the study, consent with the physician is required before patient contact. Physician consent is obtained by: Registry Patient consent is obtained by: Registry
Pediatric research considerations	None
Registry Fees	Contact the Registry for more information as fees vary based on work required. Exceptions: Contact the Registry for more information as fees vary based on work required.
IRB Fees	https://orra.rutgers.edu/sites/orra.rutgers.edu/files/HSPP/Rutgers%20University%20IRB%20Fees%209.7.17.pdf Exceptions: NIH and certain other federal or state funded projects (check with IRB office); *If you wish to request a waiver of fees for any other reason, please submit your request in writing to your campus IRB Director, providing justification.
Collaboration with local researcher required	Yes