Puerto Rico Central Cancer Registry

Last Reviewed:

Registry jurisdiction	Puerto Rico
Type of review required	Both local/state IRB review and Registry review
Type of request forms required	Separate IRB and Registry forms
IRB of record	The Comprehensive Cancer Center-University of Puerto Rico Institutional Review Board
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: 3-6 months
Patient Consent and Contact Procedures	Depending on the study, consent with the physician is required before patient contact. Physician consent is obtained by: Depends on Study Patient consent is obtained by: Depends on Study
Pediatric research considerations	None
Registry Fees	Policy to be defined Exceptions: Policy to be defined
IRB Fees	To be defined Exceptions: Policy to be defined
Collaboration with local researcher required	Yes

Puerto Rico CaRI Database Information