Virginia Cancer Registry - CaRI Database

Virginia CaRI Database Information

Last Reviewed: March 6, 2019

Virginia Cancer Registry

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Registry jurisdiction	Virginia
Type of review required	Both local/state IRB review and Registry review
Type of request forms required	Separate IRB and Registry forms
IRB of record	VDH IRB
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	http://www.vdh.virginia.gov/institutional-review-board/
Processing timeframe	For linkage studies and de-identified data release: Less than 1 month For patient contact studies: 1 - 3 months
Patient Consent and Contact Procedures	Depending on the study, consent with the physician is required before patient contact. Physician consent is obtained by: Researcher Patient consent is obtained by: Researcher
Pediatric research considerations	None
Registry Fees	The aggregate or incidence data, without PHI is free. We ask for $2000 for matching with PHI as long as the study has provisions for our costs. If not, we don't charge them. Exceptions: The aggregate data, without PHI is free.
IRB Fees	No IRB fees
Collaboration with local researcher required	No