Data Last Updated: June 9, 2025

NAACCR Item #3964: Brain Primary Tumor Location

Item # Length Source of Standard Section Name Year Implemented Version Implemented XML NAACCR ID Parent XML Element
3964 1 SEER Stage/Prognostic Factors 2024 24 brainPrimaryTumorLocation Tumor
Required Status:

NPCR Collect: Required, site specific
CoC Collect: Required
SEER Collect: Required, site specific
CCCR Collect: Required, site specific; when available

Description
The Pons and other subsites of the Brain Stem have the same ICD-O topography code (C717), which is for subsites of the Brain Stem. Clinically, information regarding the Pons is very important, especially for pediatric cases. A schema discriminator is necessary to distinguish between the pons and other subsites of the brain stem.
Rationale
The pons site is the third most common site for pediatric brain tumors and there is currently no way to identify tumors that occur in this site. Surgery is too dangerous for these types of tumors. Needle biopsies are also dangerous and extremely rare. Without pathology specimens, accurate histology is elusive making accurate incidence not possible. A cascade of implications results without accurate incidence including support for drug development.
Allowable Values
1, 2, 8, 9, Blank
Codes
Code Description
1 Pons
2 Subsite other than Pons * Basis peduncle * Cerebral peduncle * Choroid plexus of fourth ventricle * Fourth ventricle, NOS * Infratentorial brain, NOS * Medulla oblongata * Midbrain * Olive * Pyramid
8 Information not collected for this case
9 Brain stem, NOS Unknown subsite of Brain Stem
Code Notes
**Note 1:** This SSDI is effective for diagnosis years 2024+ * For cases diagnosed 2018-2023, leave this SSDI blank