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Utah CaRI Database Information

Last Reviewed: Nov. 24, 2020

Utah Cancer Registry

Registry jurisdiction Utah
Type of review required Registry review only
IRB of record IRB of researcher affiliate institution
How to submit request:
Initial required documentation

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Step-by-Step data request submission process

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Other requirements and helpful information for researchers Registry requests annual progress reports during the period the study is approved to access Registry data. Researchers who are submitting manuscripts, abstracts, or presentations based on research that included Utah Cancer Registry data MUST submit these for advance review. UCR reviews for correct acknowledgement and to assure individuals cannot be identified.
Processing timeframe
  • For linkage studies and de-identified data release: Greater than 6 months
  • For patient contact studies: Greater than 6 months
Patient Consent and Contact Procedures
  • Patient consent is obtained by: Registry
Pediatric research considerations None
Registry Fees Fees are based on the salaries and effort of Registry staff members involved in meeting the request. Patient contact projects would also be charged for supplies, such as postage, paper, and envelopes. Staff effort estimates are based on previous experience with similar projects.

Note: University of Utah will charge facilities and administrative costs (F&A or indirects) in addition to Registry costs outlined above.

Exceptions: None
IRB Fees No IRB fees
Collaboration with local researcher required No