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Utah CaRI Database Information

Last Reviewed: Nov. 24, 2020

Utah Cancer Registry



Registry Data

Population Data
  • 3,043,034Total Population Count
  • 0.9%% of US Population
  • 0.1%% of US Black Population
  • 0.6%% of US API Population
  • 1.1%% of US AI/AN* Population
  • 0.7%% of US Hispanic Population
  • 0.7%% of US Hispanic Non-White Population

*CHSDA Counties only

Cancer Data
  • 10,831Malignant Cases
  • 0.6%% of US Malignant Cases

NPCR/SEER

1966

1973

Yes

1995-2015

2008-2014

Yes (Restrictions - https://www.naaccr.org/national-interstate-data-exchange-agreement/#8)

Study Participation

Research TypeExperience with StudiesInterested in Studies
Case Contacts Studies Yes No
Geospatial Studies Yes No
Linkage Studies Yes No
Rapid Case Ascertainment Studies Yes No
Re-Abstracting/Patterns of Care Studies Yes No
Survival Studies Yes No

Contact Information

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Required Review(s) and Initial Contact

Registry review only

Yes

Cancer Registry

Registry Review Requirements

Registry Data Request Form URL(s)
URL Description
https://uofuhealth.utah.edu/utah-cancer-registry/research/ Please fill out our pre-application by clicking the green "Request cancer data" button on the top left of the page.

Email

Monthly

Registry Data Release Policy/Procedure URL(s)
URL Description
https://uofuhealth.utah.edu/utah-cancer-registry/docs/ucr-policies-procedures-disclosure.pdf Data disclosure policy
Registry Data Use (or Research) Agreement URL(s)
URL Description
https://rge.utah.edu/_resources/documents/rge-confidentiality-and-data-use-agreement.pdf Confidentiality and data use agreement - required of all individuals with any data access.

Process

Greater than 6 months

Greater than 6 months

Yes

No

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Registry requests annual progress reports during the period the study is approved to access Registry data. Researchers who are submitting manuscripts, abstracts, or presentations based on research that included Utah Cancer Registry data MUST submit these for advance review. UCR reviews for correct acknowledgement and to assure individuals cannot be identified.

No

Data Use and Renewal Requirements

As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement); Annual justification to retain data is required

Yes

Certificate of disposition of data completed and submitted to the registry.

30 days in advance

As noted in approved documents

None

N/A

Yes

Consent Requirements

No

Registry

No

Registry fees

Yes

None

Before researcher receives data

Fees are based on the salaries and effort of Registry staff members involved in meeting the request. Patient contact projects would also be charged for supplies, such as postage, paper, and envelopes. Staff effort estimates are based on previous experience with similar projects.

Note: University of Utah will charge facilities and administrative costs (F&A or indirects) in addition to Registry costs outlined above.

IRB fees

No