Minnesota Cancer Reporting System - CaRI Database

Minnesota CaRI Database Information

Last Reviewed: Oct. 30, 2024

Minnesota Cancer Reporting System

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Registry jurisdiction	Minnesota
Type of review required	Registry review only
IRB of record	IRB of researcher affiliate institution
How to submit request:	Initial cancer registry contact/discussion required prior to submitting application Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	During the Peer Review process, it is wise to begin work on the contract, which proceeds through the approval process much more quickly when Minnesota's contract form is used. When the contract is fully executed (signed 1st by MDH staff with delegated authority, then by researcher's institution's staff with authority, then the Minnesota Department of Administration), MCRS's work on the study can begin. Contract will require researcher to provide a copy of/url to the full text of all articles published as a result of the approved work.
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: 3-6 months
Patient Consent and Contact Procedures	Passive consent with the physician is required before patient contact. Physician consent is obtained by: Registry Patient consent is obtained by: Depends on Study
Pediatric research considerations	None
Registry Fees	For linkage projects, there is a fee schedule, which is based on how many records are in the file to be linked. For other study types, fees are determined by the costs MCRS will incur to perform the work: usually consists of personnel and supplies, A fully executed contract is required before work can begin. Exceptions: If request is from a Minnesota local health board, no fees are charged.
IRB Fees	No IRB fees
Collaboration with local researcher required	No