Minnesota Cancer Reporting System
Registry Data
- 5,525,666Total Population Count
- 1.7%% of US Population
- 0.9%% of US Black Population
- 1.4%% of US API Population
- 1.7%% of US AI/AN* Population
- 0.5%% of US Hispanic Population
- 0.7%% of US Hispanic Non-White Population
*CHSDA Counties only
- 30,506Malignant Cases
- 1.8%% of US Malignant Cases
NPCR
1988
1988
No
Yes
Study Participation
| Research Type | Experience with Studies | Interested in Studies |
|---|---|---|
| Case Contacts Studies | Yes | Yes |
| Geospatial Studies | Yes | Yes |
| Linkage Studies | Yes | Yes |
| Rapid Case Ascertainment Studies | Yes | Yes |
| Re-Abstracting/Patterns of Care Studies | Yes | Yes |
| Survival Studies | Yes | Yes |
Contact Information
Login is required to access this information. Log In with your MyNAACCR account.
Required Review(s) and Initial Contact
Registry review only
Yes
Cancer Registry
Registry Review Requirements
Registry Data Request Form URL(s)| URL | Description | |
|---|---|---|
| https://www.health.state.mn.us/data/mcrs/contact.html | Approval by appropriate IRB required. Application is 4-page form that asks for Hypotheses, Rationale, Research & Hypothesis-testing Methods, Significance, Timeline, & Methods to assure data privacy. |
As needed
| URL | Description | |
|---|---|---|
| https://www.health.state.mn.us/data/mcrs/contact.html | Review by Peer Review Committee; Approval by Commissioner of Health. |
| URL | Description | |
|---|---|---|
| https://www.health.state.mn.us/data/mcrs/contact.html | A Data Use or Linkage contract is required after approval of application. |
Process
1 - 3 months
3-6 months
No
No
Login is required to access this information. Log In with your MyNAACCR account.
Login is required to access this information. Log In with your MyNAACCR account.
During the Peer Review process, it is wise to begin work on the contract, which proceeds through the approval process much more quickly when Minnesota's contract form is used.
When the contract is fully executed (signed 1st by MDH staff with delegated authority, then by researcher's institution's staff with authority, then the Minnesota Department of Administration), MCRS's work on the study can begin.
Contract will require researcher to provide a copy of/url to the full text of all articles published as a result of the approved work.
No
Data Use and Renewal Requirements
As noted in approved documents (e.g. IRB/Registry Application, DUA, Confidentiality Agreement)
Yes
Written document (email or US mail) that reports that the data provided by the MDH have been destroyed on what date and by what method.
N/A
The data use application will remain "approved." MCRS must be notified of changes in protocols and/or principal investigator.
Annual update on IRB status. Contracts must be renewed before their expiration date. Maximum duration of contract is five (5) years.
N/A
No
Consent Requirements
Yes - Passive
Registry
Depends on Study
No
Registry fees
Yes
If request is from a Minnesota local health board, no fees are charged.
After researcher receives data
For linkage projects, there is a fee schedule, which is based on how many records are in the file to be linked.
For other study types, fees are determined by the costs MCRS will incur to perform the work: usually consists of personnel and supplies, A fully executed contract is required before work can begin.
IRB fees
No