Skip to Main Content

Detroit Metropolitan Area CaRI Database Information

Last Reviewed: Dec. 4, 2023

Metropolitan Detroit Cancer Surveillance System

Registry jurisdiction Detroit Metropolitan Area
Type of review required Both local/state IRB review and Registry review
Type of request forms required Separate IRB and Registry forms
IRB of record Wayne State University (WSU) Institutional Review Board (IRB)
How to submit request:
Initial required documentation

Login is required to access this information. Log In with your MyNAACCR account.

Step-by-Step data request submission process

Login is required to access this information. Log In with your MyNAACCR account.

Other requirements and helpful information for researchers Patient Contact Studies and Data Linkages with a Key Require:
1. Approval by the MDCSS Director or Assistant Director for Research.
2. Collaboration with and inclusion of a local MDCSS research program scientist.
3. Review and approval by the scientific review board (KCI Protocol Review and Monitoring Committee).
4. Wayne State University (WSU) Institutional Review Board (IRB) review and approval.
5. Patient identifiers will not be released.
Processing timeframe
  • For linkage studies and de-identified data release: 1 - 3 months
  • For patient contact studies: 3-6 months
Patient Consent and Contact Procedures
  • Passive consent with the physician is required before patient contact. Physician consent is obtained by: Registry
  • Patient consent is obtained by: Registry
Pediatric research considerations None
Registry Fees Due to university regulations, fees can change over time. The current fee structure is listed below on the university cancer research institute website. For more information please refer to

Exceptions: Requests for data frequency or cancer information do not have fees assessed. Requests for sophisticated analytical support will be charged fees by the hour.
IRB Fees Initial submission, Full Board review = $3000. Initial submission, Expedited review = $2000. Continuing review = $1250. Full Board Amendment review = $750. Expedited Amendment review = $100. Final report/close-out = $250.

Exceptions: WSU IRB fees are charged only to Industry and For Profit companies. Nonprofits are not charged fees.
Collaboration with local researcher required Yes