Nevada Statewide Cancer Registry - CaRI Database

Nevada CaRI Database Information

Last Reviewed: Dec. 1, 2023

Nevada Statewide Cancer Registry

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Registry jurisdiction	Nevada
Type of review required	Registry review only
IRB of record	IRB of researcher affiliate institution
How to submit request:	Researcher should submit request to Cancer Registry Cancer Registry via Email to: John Doe Registry Director 101 Home Road, Suite 200B Washington, DC, 11111 Email: Phone: 111-111-1111
Initial required documentation	Login is required to access this information. Log In with your MyNAACCR account.
Step-by-Step data request submission process	Login is required to access this information. Log In with your MyNAACCR account.
Other requirements and helpful information for researchers	It is important to stress the review and approval requirements of proposed publications based on cancer registry data per NAC 457.140. Researchers who willfully violate these provisions after having signed a statement acknowledging them may incur legal liability for their conduct.
Processing timeframe	For linkage studies and de-identified data release: 1 - 3 months For patient contact studies: N/A
Patient Consent and Contact Procedures	Patient consent is obtained by: Researcher
Pediatric research considerations	Parental consent would be required instead of patient consent for confidential, personal identifying information from the registry.
Registry Fees	NAC 457 section 2. medical researcher who obtains data from the registry, a fee of $200 or the actual cost of providing the data, whichever is more. We usually follow the formula from NCI. For more information please refer to https://www.leg.state.nv.us/NAC/NAC-457.html#NAC457Sec150 Exceptions: No exceptions
IRB Fees	No IRB fees
Collaboration with local researcher required	No