Version 25
Data Item #3917: Primary Sclerosing Cholangitis

Length: 1
Source of Standard: NAACCR
Section Name: Stage/Prognostic Factors
Year Implemented: 2018
Version Implemented: 18
Record Types: A, M, C, I

XML NAACCR ID: primarySclerosingCholangitis

Parent XML Element: Tumor

Required Status:

NPCR Collect: . - No recommendations
CoC Collect: RS - Required, site specific
SEER Collect: . - No recommendations
CCCR Collect: . - No recommendations

Description:

Primary sclerosing cholangitis denotes a chronic autoimmune inflammation of the bile ducts that leads to scar formation and narrowing of the ducts over time. It is a prognostic factor for intrahepatic bile duct cancer.

Rationale:

Primary Sclerosing Cholangitis is a Registry Data Collection Variable in AJCC. This data item was previously collected for Intrahepatic Bile Duct, SSF# 11.

Item Data Type:

digits

Allowable Values

0, 1, 8, 9

Codes:

0	PSC not identified/not present
1	PSC present
8	Not applicable: Information not collected for this case (If this information is required by your standard setter, use of code 8 may result in an edit error.)
9	Not documented in medical record PSC not assessed or unknown if assessed

Code Notes:

Each Site-Specific Data Item (SSDI) applies only to selected primary sites, histologies, and years of diagnosis. Depending on applicability and standard-setter requirements, SSDIs may be left blank.

Version 25 Data Item #3917: Primary Sclerosing Cholangitis